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S C A N X I E T Y ! ! !

August 27, 2018 by carol anne Leave a Comment

From tonight’s Lacuna Loft Unspoken Ink session…

 

Totally not me

 

In my head I hear cheerleaders shouting,

S  U  C  C  E  S  S !

That’s the way we spell success!

 

 

S C A N X I E T Y !

That’s the way we spell scanxiety!

 

Wait! So, is this Bring it On for cancer survivors? Am I Big Red, all bossy and bitchy in charge of being bossy and bitchy?

 

Another MRI? Again? Already? I just washed my big girl Spanx from the last MRI. I don’t think I even took my pom poms out of the car yet. Oh well, guess I’ll just leave them there now. Do I remember how to cradle out of the pyramid? Who thought stunts were a good idea for the chick with the fragile Frankenstein head? Don’t they know how hard it is to keep a wig on during cartwheels? S C A N X I E TY! If you can’t beat it you may as well cheer about it.

 

 

 

Posted in: Major Surgery & the Road to Recovery Tagged: Bring it On, cancer, MRI, scan anxiety, scanxiety

Wrapping Up the Saga of the Rosary

August 17, 2018 by carol anne Leave a Comment

 

Okay, so it’s time to wrap up the whole rosary saga. The floral rosary from my husband’s casket that I sent away to be turned into silk flowers finally arrived on Tuesday morning, four months and one day after I’d mailed them in and three months and ten days since my check was cashed. Along with the silk flower rosary I’d also paid for a handheld rosary that I could pray. The handheld rosary was not in the package with the floral rosary so I called the company and spoke to the woman who had been helping me finally get the silk rosary delivered to my house. She expressed disappointment that I had not received the handheld rosary and told me it would be mailed that day. I didn’t make a big deal of it with her and I didn’t mention it on social media because I didn’t want to seem ungrateful for all the effort people went to helping me get the rosary from Chuck’s casket. And, if I’m being truthful, I really didn’t care if it ever arrived, it was only $5 and it wasn’t tied to Chuck in any way, but when my contact at the company told me there was no tracking number because it had not been sent out yet I was really angry and ready to go as many rounds as I would have needed to get the handheld rosary. I just cannot understand the continued lying or misinformation.

 

It arrived today and is actually beautiful, but I just cannot wrap my head around why this company, who I would assume regularly deals with grieving family members, continues to either outright lie or just tell people what they think they want to hear rather than offering truthful explanations and providing honest timelines. If at any point during all of this someone at the company had bothered to return my phone calls and explained they were either swamped with more work than they could handle or were having processing or shipping problems and that I would just need to be patient I would have been understanding and patient. But, leaving a grieving widow without answers and leaving her to wonder if she’ll ever see the rosary again is just wrong and I can’t abide by that. I called in either late June or early July and that person told me they would call me back to tell me where the rosary was in the process, but never did. The first person I spoke to in early August told me, yes, I see your last name on the caller id and I know your rosary went out in the shipment on Friday, August 3. The second person I spoke to that same week promised to call me back with whatever information she could come up with after telling me there was no tracking number because they send packages via UPS and then it’s just gone. I left a voicemail the afternoon of Friday, August 10 to which no one has ever replied, nor has anyone replied to the email I sent on the evening of Friday, August 10 with a link to my original blog post.

 

I called Monday, August 13 and finally spoke to someone helpful, but I refused to allow her to call me back so I sat on hold for a short while only to find out the rosary had just come back ((I never did ask from where) and would be mailed out that day. So why for a full week did the company allow me to believe the rosary had been mailed out and that no one knew where it was and there was no way to track it? I really don’t understand why a company who deals with grieving loved ones would offer such lousy customer service? You would think they would want to treat the grieving, who are full of raw nerves and emotion, with sensitivity and understanding. I don’t know why this company continues to operate in complete disorganization or continues to lie to the grieving, but I’m grateful to not have to ever deal with them again. If it came down to it, I would dry the flowers in the original rosary or do without rather than ever send something so meaningful and precious to this company again. I could not deal with extraordinary mental and physical stress this whole saga caused.

 

If you ever find yourself in the heartbreaking position of having lost and buried a loved one I strongly suggest looking for a local florist who provides this service because I do not think the grieving should have to deal with what I can only suppose is a disorganized and possibly overwhelmed with work company who refuses to take the time to call customers back or reply to email.

 

I’m so grateful to the family and friends with connections in the USPS and UPS and the wonderful funeral director who jumped in to help me finally get the rosary home. Their help prevented me from having an actual nervous breakdown.

 

I’m still not going to share the name of the company. I don’t believe they are evil or trying to scam the grieving. I honestly believe they just can’t get their stuff together. Both rosaries are here and I’m no longer an emotional and physical wreck.  Thank you to all who jumped in to help and to all who offered emotional support, you really did keep me from having an actual breakdown.

Posted in: The Widow Diaries Tagged: death, floral casket rosary, funeral rosary, having live flowers in floral casket rosary changed out for silk flowers, when grieving be careful who you deal with, widow

Be Bold and Mighty Forces Will Come to Your Aid

August 15, 2018 by carol anne Leave a Comment

Cathedral Basilica of Saints Peter and Paul, Philadelphia

 

Two posts from me. In one day? Hell may have truly frozen over. But, I just came home from mass and my heart was overflowing.

 

I went to mass tonight for the first time since my cancer returned and I lost my left side vision and Chuck died. I got in an Uber and off I went. My driver was a woman named Tasha, who lives one development over. She’s a born again Christian and we talked the whole way to mass. I was her first and second Uber fares, tonight was her first night driving. I really believe there are no coincidences and that God puts people in front of us when they are meant to be there.

 

I feel like I’m in the midst of spiritual reawakening. Ever since I took part in the 101 Tasks in in 1,001 days I’ve been thinking about what my spiritual goals are. One goal I wrote down for the 101 Tasks was go to mass on the feast of the Assumption. I didn’t feel great this morning, in fact I’ve been exceptionally tired all week, but I had my art class today and it was our summer birthdays party and I promised to bring the pizza from Liscio’s so I got myself together and got in an Uber, picked up the pizza, and headed to class. It was a good class with lots of good, happy, fun conversation. These ladies are so amazing.

 

As I was saying, I believe God puts people in front of you when they are supposed to be there. One of these amazing women, Deborah, gave me a card last week with a bible verse from Corinthians, “My grace is sufficient for you, for my power is made perfect in weakness.” I’ve been meditating on these words every day when I say my rosary, along with the words I found when reading about praying more intentionally, “God, please turn up in my messy life.”

 

Another of my spiritual goals from the 101 Tasks was the to back to saying the rosary every day and Kelly’s Tiny Rosary arrived just in time to be part of that goal. I feel loved when I pray my new, fun rosary.

 

I cried my way through mass tonight, weepy with gratitude that God brought me there and allowed me the courage to not be afraid to be out alone. I’ve run errands alone with an Uber waiting right outside, but I was alone for almost an hour tonight. I knew Tasha said she would hang around and if she didn’t get another call would come back for me after mass so I felt a little more comfortable knowing she might be back. I’ve been so afraid for so long, it’s tough to be independent when a migraine might come on and cause a visual disturbance. And, I’ve been so angry, confused, and lost at all that’s happened in the last two years. I’ve founded in my faith and at times I’ve been hatefully angry at God and the universe and fate. I’ve doubted and cursed God. How do you beg mercy from a God you’d like to pummel? You just do.

 

I am weepy with gratitude for the last few really good days. Sunday with an amazing group of amazing women, Monday getting myself to and from my neurologist appointment alone in an Uber, Tuesday doing the same to get to my therapist appointment and Rite to pick up a prescription, and today to Liscio’s, my art class, and mass. Freedom is an incredible gift and loss of freedom and independence is huge loss. I’m slowly finding my faith, my feet, and my freedom again and it feels good.

 

When I got out of the car tonight Tasha told me she would pray for me and I told her that I have my MRI coming up on August 31st and she prayed with me right there. I got mostly positive news when a loved one prayed over me in July so I’m hopeful Tasha’s prayers will be equally helpful. I really am weepy with gratitude that I was able to go to mass tonight on this, the feast of the Assumption.

 

I am so blessed to be surrounded by so many loving family, friends, and an assorted cast of characters who inspire me and make me feel safe enough to be brave.

 

Blessed be…

Posted in: Major Surgery & the Road to Recovery, Soul Baring Ramblings, Spiritual Ramblings Tagged: 101 tasks in 1001 days, Catholic, chance encounters, church, Faith, Feast of the Assumption, gratitude, Love, no coincidences

UnSpoken Ink: Raw & Unfinished Snippets

August 15, 2018 by carol anne Leave a Comment

On Monday night Lacuna Loft’s Unspoken Ink fall session began. . The two pieces below are my writings from that session. Sometimes I forget the power of words, written and spoken. The object of the writing workshop is to write from the top of your head in the whole time allotted. As I was writing, By Heart I didn’t realize the emotions attached to the words I’d written but as I read it out loud to the group I broke down in tears. There’s so much magic in the art of writing. It allows me to open up and let words flow from my heart and mind; words I didn’t know were there until I sit down with pen in hand.

 

By the Numbers, was inspired by another writer’s response to the first prompt. I was struck by her use of the word grace in terms of walking and dancing. I used grace in terms of God’s grace in my second piece. I didn’t know where I was going with the number I’d chosen (8) until I started writing. While I was writing I assumed it was going to be me complaining in list form, but it became so much more; more than I knew about myself until it was there on the paper.

 

These Unspoken Ink workshops are so amazing and so good for me. They allow me to sit down and just write without overthinking everything and getting stuck in my head. They are freeing and so cathartic.

 

By Heart and By the Numbers are below.

 

 

By the Heart

 

Her pink hair flying in the wind, pedaling like hell to keep up, Annie thought,” It’s just like riding a bike my ass!” Sweating and puffing, cursing herself for believing Amelia this would be easy. Maybe it had been easier, maybe it had been easier 100 pounds, 30 years, and two cancer diagnoses ago but it definitely wasn’t now. “Who thought this was a good idea? What was I thinking?”  She knew the streets by heart, past the church where they were married, past the pizza shop where he worked, past the front steps of her parents’ house where he kissed her for the first time. Puffing and sweating, crying hot, salty, bittersweet tears of loss and longing. She knew this place, these streets by heart, this was home. Her pink hair flying, her broken heart pounding, sweat pouring down her back; she pedaled, because, it was just like riding a bike.

 

I took this photo in 2016 on the day I found out I was four years cancer free. As it turns out, it was the last time either Chuck or I could say we were cancer free. Chuck was diagnosed eight months later and my recurrence was found five months after Chuck’s diagnosis.

 

By the Numbers

 

8 years ago, this all began, 1 trip to the ER, 1 ambulance ride to the hospital that actually had a neuro department, 2 surgeries, 5 days I don’t remember, 1 cancer diagnosis, 10 days in ICU, 3 days in step down, 5 days in rehab, 32 radiation treatments in 8 weeks, 8 more surgeries, and 30 more radiation treatments, 1 dead husband, 1 year watching him die, and somehow, I’ve found my grace. Somehow, I’m more whole and more real. Somehow 8 years of sickness, loss, treatments, and uncertainty has brought me grace, and love, and strength; a life I didn’t know existed, a life I didn’t know I was allowed to have.

 

8 years, 1 cancer diagnosis, 1 cancer recurrence, 5 deaths, 10 surgeries, 62 radiation treatments, and an uncertain future have not robbed me of my soul. I walk in grace because I’ve walked through fire, questioned and am still questioning my faith, suffered, lost, and picked up the pieces. I am strong because I believe, I am brave because I have faith. I walk in grace because I have all of you.

 

I am lost…

I am found…

I am still here.

 

 

 

 

 

Posted in: Major Surgery & the Road to Recovery, The Widow Diaries Tagged: cancer, Faith, grace, Lacuna Loft, loss, Love, Unspoken Ink, widow

Help Me Get My Rosary

August 10, 2018 by carol anne Leave a Comment

I am so sorry to bother you with this, but I don’t know who else to ask for help with this. I’m so upset. I don’t know what to do. I’ve spent most of today a total wreck on the verge of tears.

When Chuck died in November I asked about having the funeral rosary made of flowers turned into one made of silk flowers and the nice woman funeral director gave me an envelope that I could mail into a company who does this. I mailed the flower rosary in on April 13 and requested both the silk flower rosary and a regular rosary. They cashed my check on May 4th. I called the company for the first time in either late June or early July and the woman I spoke to told me it normally takes 12 weeks from the date the check was cashed and told me she would call me right back to let me know where my rosary was in the process and never did.

August 3rd was 12 weeks so I called on Monday, August 6th to find out where my rosary was and I was told all rosaries were mailed out on Friday, August 3rd. I called back on Thursday, August 9th and the person I spoke to confirmed they have my correct address and told me they were sent out by UPS but could not provide me with a tracking number. She told me they give it to UPS and it’s gone. She told me she would call me back to try to give me more info and never did.

I called this afternoon and only got their voicemail. I told them if they didn’t call me back today that Monday morning my first call was going to be to the state attorney general to have them prosecuted for mail fraud, my second call was going to be to the Better Business Bureau, and third I was going to get on social media to tell my story. Even this didn’t motivate them to call me back. This was my 4th call since late June or early July.

Does anyone have any idea what I should do next? I’m beside myself and I can’t deal with this anymore, it’s making me sick. I need to find a way to resolve this issue and get Chuck’s rosary. On Monday it will be 4 months since I mailed my check in and 3 months and 10 days since they cashed my check. I honestly don’t know where else to go with this. I’m a wreck. I’m starting to feel like I did last May when I had the meltdown over the Kindle in the hospital and I can’t let myself get back to that place again.

I said my rosary earlier this evening and took a 20-minute nap, both of which helped calm the anxiety and I’m no longer on the verge of tears, but I don’t know where to go from here. Any help or suggestions as to what to do next would be very helpful.

I’m not going to share the name of the company. I don’t want to start a campaign against them, I just want the rosary from my husband’s casket.

 

Posted in: The Widow Diaries Tagged: casket rosary, flower rosary, funeral rosary, rosary, widow
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